Journey of saving Lives of the Thalassemia affected
Crisis: In India, there are 35 million Thalassemia gene carriers and 10-12,000 infants are born every year with major Haemoglobinopathies. Thalassemia patients need costly medicines and safe blood transfusion every 2-3 weeks.
TSCS has a Transfusion Center, Blood Bank and Diagnostic Center, equipped with the latest facilities and offering free safe blood transfusions, medical and genetic counselling, periodic checkups and medicines at subsidized rates.
Outcome: 1) Annually, Transfusion Center helps around 2,000 patients (3 months to >20 year olds). 2) 50% of the patients are children <10 years old, thus there is scope for permanent cure. 3) Blood Bank provides 10-12,000 units yearly.
Future Plan: Bone Marrow Transplant (cost >Rs1.5 million/patient) is the only permanent cure for Thalassemia. TSCS is establishing BMT units to enhance the outcome and reduce cost.
Income Rs8 cr
Expense Rs5 cr
Source : Audit Report 2017
Read other NGO Snapshots
All the essential information on an NGO
Pune Neurosciences Trust and Research Society's Samavedana