Snapshot
Thalassemia and Sickle Cell Society (TSCS)
SECTOR: Health
SUB SECTOR: Medical services
UN Sustainable Development Goal:
Goal 3: Good Health and Well Being
% Spent on beneficiaries
89%
Financial Score:
Age: 23 Years
Tax Benefit: 50%
Foreign donations:
Location(s): Telangana
Issues Addressed:
Promote appropriate treatment and quality life for Thalassemia and Sickle cell anemia affected
Supported by:
Shree Jewellers; Vasudha Foundation; Tibarumal Sons; Sud-Chemie India; Government of Telangana; AIMS Asia; Jindal Aluminium; Rotary Club of Hyderabad
Key Trustees:
Ms. K. Ratnavalli; Dr. Suman Jain; Mr. Chandrakant Agarwal; Mr. Manoj Rupani
Recognition: Award of excellence from NBTC and NACO for working towards 100% voluntary blood donation - 2016
Sector Comparison:
Beneficiary Spend:
Average: 79.6% Highest: 99.9% Lowest: 28.7%
Income:
Average: Rs6 cr Highest: Rs115 cr Lowest: Rs1 lac
How much to donate
  • Rs6,500/month for supporting 1 Thalassemia affected child.
  • Rs33,000 for 1 Portable Infusion Pump for a poor patient.
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Journey of saving Lives of the Thalassemia affected
  • Crisis: In India, there are 35 million Thalassemia gene carriers and 10-12,000 infants are born every year with major Haemoglobinopathies. Thalassemia patients need costly medicines and safe blood transfusion every 2-3 weeks.
  • Programs: TSCS runs a Blood Transfusion Center (the only one in Telangana) with 30 beds, a Blood Bank, Research Lab, and Diagnostic Center equipped with the latest facilities. They offer free safe blood transfusions, medical and genetic counseling, periodic checkups, and medicines at subsidized rates. A Bone-Marrow Transplantation (BMT) unit has been recently established for permanently curing patients suffering from Thalassemia.
  • Outcome: 1) Annually, the Transfusion Center helps around 2,000 patients (from 3 month old infants to <20 year olds). 2) 50% of the patients are children <10 years old and thus there is scope for permanent cure. 3) The Blood Bank provides 10,000-12,000 units of blood yearly. 4) BMT successfully performed on 3 patients so far. 5) Quality medical treatment provided in a cashless manner to 451 families living below the poverty line and covered under the Government's Aarogyasri Scheme.
Income
Rs
8 cr
Expense
Rs
5 cr
Source : Audit Report 2018
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